Dystonia rating scales: critique and recommendations
Identifieur interne : 000A14 ( Main/Exploration ); précédent : 000A13; suivant : 000A15Dystonia rating scales: critique and recommendations
Auteurs : Alberto Albanese [Italie] ; Francesca Del Sorbo [Italie] ; Cynthia Comella [États-Unis] ; H. A. Jinnah [États-Unis] ; Jonathan W. Mink [États-Unis] ; Bart Post [Pays-Bas] ; Marie Vidailhet [France] ; Jens Volkmann [Allemagne] ; Thomas T. Warner [Royaume-Uni] ; Albert F. G. Leentjens [Pays-Bas] ; Pablo Martinez-Martin [Espagne] ; Glenn T. Stebbins [États-Unis] ; Christopher G. Goetz [États-Unis] ; Anette Schrag [Royaume-Uni]Source :
- Movement disorders : official journal of the Movement Disorder Society [ 0885-3185 ] ; 2013.
English descriptors
- KwdEn :
- MESH :
- diagnosis : Dystonia.
- psychology : Dystonia.
- statistics & numerical data : Databases, Factual.
- therapy : Dystonia.
- Health Planning Guidelines, Humans, Psychometrics, Questionnaires, Severity of Illness Index.
Abstract
Many rating scales have been applied to the evaluation of dystonia, but only few have been assessed for clinimetric properties. The Movement Disorders Society commissioned this task force to critique existing dystonia rating scales and place them in the clinical and clinimetric context.
A systematic literature review was conducted to identify rating scales that have either been validated or used in dystonia.
Thirty six potential scales were identified. Eight were excluded because they did not meet review criteria, leaving twenty-eight scales that were critiqued and rated by the task force. Seven scales were found to meet criteria to be “recommended”: the Blepharospasm Disability Index is recommended for rating blepharospasm; the Cervical Dystonia Impact Scale and the Toronto Western Spasmodic Torticollis Rating Scale for rating cervical dystonia; the Craniocervical Dystonia Questionnaire for blepharospasm and cervical dystonia; the Voice Handicap Index (VHI) and the Vocal Performance Questionnaire (VPQ) for laryngeal dystonia; and the Fahn-Marsden Dystonia Rating Scale for rating generalized dystonia. Two “recommended” scales (VHI and VPQ) are generic scales validated on few patients with laryngeal dystonia, whereas the others are disease-specific scales. Twelve scales met criteria for “suggested” and seven scales met criteria for “listed”. All the scales are individually reviewed in the
The task force recommends five specific dystonia scales and suggests to further validate in dystonia two recommended generic voice-disorder scales. Existing scales for oromandibular, arm and task-specific dystonia should be refined and fully assessed. Scales should be developed for body regions where no scales are available, such as lower limbs and trunk.
Url:
DOI: 10.1002/mds.25579
PubMed: 23893443
PubMed Central: 4207366
Affiliations:
- Allemagne, Espagne, France, Italie, Pays-Bas, Royaume-Uni, États-Unis
- Communauté de Madrid, Gueldre, Géorgie (États-Unis), Illinois, État de New York
- Madrid, Nimègue, Paris
Links toward previous steps (curation, corpus...)
- to stream Pmc, to step Corpus: 000340
- to stream Pmc, to step Curation: 000340
- to stream Pmc, to step Checkpoint: 000125
- to stream PubMed, to step Corpus: 000814
- to stream PubMed, to step Curation: 000814
- to stream PubMed, to step Checkpoint: 000A23
- to stream Ncbi, to step Merge: 003C82
- to stream Ncbi, to step Curation: 003C82
- to stream Ncbi, to step Checkpoint: 003C82
- to stream Main, to step Merge: 000A14
- to stream Main, to step Curation: 000A14
Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Dystonia rating scales: critique and recommendations</title>
<author><name sortKey="Albanese, Alberto" sort="Albanese, Alberto" uniqKey="Albanese A" first="Alberto" last="Albanese">Alberto Albanese</name>
<affiliation wicri:level="1"><nlm:aff id="A1">Istituto di Neurologia, Università Cattolica del sacro Cuore, Milano, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Istituto di Neurologia, Università Cattolica del sacro Cuore, Milano</wicri:regionArea>
<wicri:noRegion>Milano</wicri:noRegion>
</affiliation>
<affiliation wicri:level="1"><nlm:aff id="A2">Neurologia I, Istituto Neurologico Carlo Besta, Milano, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Neurologia I, Istituto Neurologico Carlo Besta, Milano</wicri:regionArea>
<wicri:noRegion>Milano</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Sorbo, Francesca Del" sort="Sorbo, Francesca Del" uniqKey="Sorbo F" first="Francesca Del" last="Sorbo">Francesca Del Sorbo</name>
<affiliation wicri:level="1"><nlm:aff id="A2">Neurologia I, Istituto Neurologico Carlo Besta, Milano, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Neurologia I, Istituto Neurologico Carlo Besta, Milano</wicri:regionArea>
<wicri:noRegion>Milano</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Comella, Cynthia" sort="Comella, Cynthia" uniqKey="Comella C" first="Cynthia" last="Comella">Cynthia Comella</name>
<affiliation wicri:level="2"><nlm:aff id="A3">Department of Neurological Sciences, Rush Medical College, Chicago, Illinois, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurological Sciences, Rush Medical College, Chicago, Illinois</wicri:regionArea>
<placeName><region type="state">Illinois</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Jinnah, H A" sort="Jinnah, H A" uniqKey="Jinnah H" first="H. A." last="Jinnah">H. A. Jinnah</name>
<affiliation wicri:level="2"><nlm:aff id="A4">Departments of Neurology, Human Genetics, and Pediatrics, Emory University, Atlanta, Georgia, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Departments of Neurology, Human Genetics, and Pediatrics, Emory University, Atlanta, Georgia</wicri:regionArea>
<placeName><region type="state">Géorgie (États-Unis)</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Mink, Jonathan W" sort="Mink, Jonathan W" uniqKey="Mink J" first="Jonathan W." last="Mink">Jonathan W. Mink</name>
<affiliation wicri:level="2"><nlm:aff id="A5">Department of Neurology, University of Rochester Medical Center, Rochester, New York, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurology, University of Rochester Medical Center, Rochester, New York</wicri:regionArea>
<placeName><region type="state">État de New York</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Post, Bart" sort="Post, Bart" uniqKey="Post B" first="Bart" last="Post">Bart Post</name>
<affiliation wicri:level="3"><nlm:aff id="A6">Department of Neurology, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands</nlm:aff>
<country xml:lang="fr">Pays-Bas</country>
<wicri:regionArea>Department of Neurology, Radboud University Nijmegen Medical Center, Nijmegen</wicri:regionArea>
<placeName><settlement type="city">Nimègue</settlement>
<region type="province" nuts="2">Gueldre</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Vidailhet, Marie" sort="Vidailhet, Marie" uniqKey="Vidailhet M" first="Marie" last="Vidailhet">Marie Vidailhet</name>
<affiliation wicri:level="1"><nlm:aff id="A7">Department of Neurology, Pitié-Salpêtrière Hospital, Paris, France</nlm:aff>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Neurology, Pitié-Salpêtrière Hospital, Paris</wicri:regionArea>
<placeName><settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Volkmann, Jens" sort="Volkmann, Jens" uniqKey="Volkmann J" first="Jens" last="Volkmann">Jens Volkmann</name>
<affiliation wicri:level="1"><nlm:aff id="A8">Department of Neurology, University of Wurzburg, Germany</nlm:aff>
<country xml:lang="fr">Allemagne</country>
<wicri:regionArea>Department of Neurology, University of Wurzburg</wicri:regionArea>
<wicri:noRegion>University of Wurzburg</wicri:noRegion>
<wicri:noRegion>University of Wurzburg</wicri:noRegion>
<wicri:noRegion>University of Wurzburg</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Warner, Thomas T" sort="Warner, Thomas T" uniqKey="Warner T" first="Thomas T." last="Warner">Thomas T. Warner</name>
<affiliation wicri:level="1"><nlm:aff id="A9">Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ, United Kingdom</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ</wicri:regionArea>
<wicri:noRegion>London WCIN 1PJ</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Leentjens, Albert F G" sort="Leentjens, Albert F G" uniqKey="Leentjens A" first="Albert F. G." last="Leentjens">Albert F. G. Leentjens</name>
<affiliation wicri:level="1"><nlm:aff id="A10">Department of Psychiatry, Maastricht University Medical Center, Maastricht, the Netherlands</nlm:aff>
<country xml:lang="fr" wicri:curation="lc">Pays-Bas</country>
<wicri:regionArea>Department of Psychiatry, Maastricht University Medical Center, Maastricht</wicri:regionArea>
<wicri:noRegion>Maastricht</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Martinez Martin, Pablo" sort="Martinez Martin, Pablo" uniqKey="Martinez Martin P" first="Pablo" last="Martinez-Martin">Pablo Martinez-Martin</name>
<affiliation wicri:level="3"><nlm:aff id="A11">Alzheimer Disease Research Unit and CIBERNED, Alzheimer Center Reina Sofia Foundation, Carlos III Institute of Health, Madrid, Spain</nlm:aff>
<country xml:lang="fr">Espagne</country>
<wicri:regionArea>Alzheimer Disease Research Unit and CIBERNED, Alzheimer Center Reina Sofia Foundation, Carlos III Institute of Health, Madrid</wicri:regionArea>
<placeName><settlement type="city">Madrid</settlement>
<region nuts="2" type="region">Communauté de Madrid</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Stebbins, Glenn T" sort="Stebbins, Glenn T" uniqKey="Stebbins G" first="Glenn T." last="Stebbins">Glenn T. Stebbins</name>
<affiliation wicri:level="2"><nlm:aff id="A12">Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois</wicri:regionArea>
<placeName><region type="state">Illinois</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Goetz, Christopher G" sort="Goetz, Christopher G" uniqKey="Goetz C" first="Christopher G." last="Goetz">Christopher G. Goetz</name>
<affiliation wicri:level="2"><nlm:aff id="A12">Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois</wicri:regionArea>
<placeName><region type="state">Illinois</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Schrag, Anette" sort="Schrag, Anette" uniqKey="Schrag A" first="Anette" last="Schrag">Anette Schrag</name>
<affiliation wicri:level="1"><nlm:aff id="A9">Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ, United Kingdom</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ</wicri:regionArea>
<wicri:noRegion>London WCIN 1PJ</wicri:noRegion>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">PMC</idno>
<idno type="pmid">23893443</idno>
<idno type="pmc">4207366</idno>
<idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4207366</idno>
<idno type="RBID">PMC:4207366</idno>
<idno type="doi">10.1002/mds.25579</idno>
<date when="2013">2013</date>
<idno type="wicri:Area/Pmc/Corpus">000340</idno>
<idno type="wicri:Area/Pmc/Curation">000340</idno>
<idno type="wicri:Area/Pmc/Checkpoint">000125</idno>
<idno type="wicri:source">PubMed</idno>
<idno type="wicri:Area/PubMed/Corpus">000814</idno>
<idno type="wicri:Area/PubMed/Curation">000814</idno>
<idno type="wicri:Area/PubMed/Checkpoint">000A23</idno>
<idno type="wicri:Area/Ncbi/Merge">003C82</idno>
<idno type="wicri:Area/Ncbi/Curation">003C82</idno>
<idno type="wicri:Area/Ncbi/Checkpoint">003C82</idno>
<idno type="wicri:doubleKey">0885-3185:2013:Albanese A:dystonia:rating:scales</idno>
<idno type="wicri:Area/Main/Merge">000A14</idno>
<idno type="wicri:Area/Main/Curation">000A14</idno>
<idno type="wicri:Area/Main/Exploration">000A14</idno>
</publicationStmt>
<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Dystonia rating scales: critique and recommendations</title>
<author><name sortKey="Albanese, Alberto" sort="Albanese, Alberto" uniqKey="Albanese A" first="Alberto" last="Albanese">Alberto Albanese</name>
<affiliation wicri:level="1"><nlm:aff id="A1">Istituto di Neurologia, Università Cattolica del sacro Cuore, Milano, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Istituto di Neurologia, Università Cattolica del sacro Cuore, Milano</wicri:regionArea>
<wicri:noRegion>Milano</wicri:noRegion>
</affiliation>
<affiliation wicri:level="1"><nlm:aff id="A2">Neurologia I, Istituto Neurologico Carlo Besta, Milano, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Neurologia I, Istituto Neurologico Carlo Besta, Milano</wicri:regionArea>
<wicri:noRegion>Milano</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Sorbo, Francesca Del" sort="Sorbo, Francesca Del" uniqKey="Sorbo F" first="Francesca Del" last="Sorbo">Francesca Del Sorbo</name>
<affiliation wicri:level="1"><nlm:aff id="A2">Neurologia I, Istituto Neurologico Carlo Besta, Milano, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Neurologia I, Istituto Neurologico Carlo Besta, Milano</wicri:regionArea>
<wicri:noRegion>Milano</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Comella, Cynthia" sort="Comella, Cynthia" uniqKey="Comella C" first="Cynthia" last="Comella">Cynthia Comella</name>
<affiliation wicri:level="2"><nlm:aff id="A3">Department of Neurological Sciences, Rush Medical College, Chicago, Illinois, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurological Sciences, Rush Medical College, Chicago, Illinois</wicri:regionArea>
<placeName><region type="state">Illinois</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Jinnah, H A" sort="Jinnah, H A" uniqKey="Jinnah H" first="H. A." last="Jinnah">H. A. Jinnah</name>
<affiliation wicri:level="2"><nlm:aff id="A4">Departments of Neurology, Human Genetics, and Pediatrics, Emory University, Atlanta, Georgia, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Departments of Neurology, Human Genetics, and Pediatrics, Emory University, Atlanta, Georgia</wicri:regionArea>
<placeName><region type="state">Géorgie (États-Unis)</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Mink, Jonathan W" sort="Mink, Jonathan W" uniqKey="Mink J" first="Jonathan W." last="Mink">Jonathan W. Mink</name>
<affiliation wicri:level="2"><nlm:aff id="A5">Department of Neurology, University of Rochester Medical Center, Rochester, New York, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurology, University of Rochester Medical Center, Rochester, New York</wicri:regionArea>
<placeName><region type="state">État de New York</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Post, Bart" sort="Post, Bart" uniqKey="Post B" first="Bart" last="Post">Bart Post</name>
<affiliation wicri:level="3"><nlm:aff id="A6">Department of Neurology, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands</nlm:aff>
<country xml:lang="fr">Pays-Bas</country>
<wicri:regionArea>Department of Neurology, Radboud University Nijmegen Medical Center, Nijmegen</wicri:regionArea>
<placeName><settlement type="city">Nimègue</settlement>
<region type="province" nuts="2">Gueldre</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Vidailhet, Marie" sort="Vidailhet, Marie" uniqKey="Vidailhet M" first="Marie" last="Vidailhet">Marie Vidailhet</name>
<affiliation wicri:level="1"><nlm:aff id="A7">Department of Neurology, Pitié-Salpêtrière Hospital, Paris, France</nlm:aff>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Neurology, Pitié-Salpêtrière Hospital, Paris</wicri:regionArea>
<placeName><settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Volkmann, Jens" sort="Volkmann, Jens" uniqKey="Volkmann J" first="Jens" last="Volkmann">Jens Volkmann</name>
<affiliation wicri:level="1"><nlm:aff id="A8">Department of Neurology, University of Wurzburg, Germany</nlm:aff>
<country xml:lang="fr">Allemagne</country>
<wicri:regionArea>Department of Neurology, University of Wurzburg</wicri:regionArea>
<wicri:noRegion>University of Wurzburg</wicri:noRegion>
<wicri:noRegion>University of Wurzburg</wicri:noRegion>
<wicri:noRegion>University of Wurzburg</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Warner, Thomas T" sort="Warner, Thomas T" uniqKey="Warner T" first="Thomas T." last="Warner">Thomas T. Warner</name>
<affiliation wicri:level="1"><nlm:aff id="A9">Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ, United Kingdom</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ</wicri:regionArea>
<wicri:noRegion>London WCIN 1PJ</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Leentjens, Albert F G" sort="Leentjens, Albert F G" uniqKey="Leentjens A" first="Albert F. G." last="Leentjens">Albert F. G. Leentjens</name>
<affiliation wicri:level="1"><nlm:aff id="A10">Department of Psychiatry, Maastricht University Medical Center, Maastricht, the Netherlands</nlm:aff>
<country xml:lang="fr" wicri:curation="lc">Pays-Bas</country>
<wicri:regionArea>Department of Psychiatry, Maastricht University Medical Center, Maastricht</wicri:regionArea>
<wicri:noRegion>Maastricht</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Martinez Martin, Pablo" sort="Martinez Martin, Pablo" uniqKey="Martinez Martin P" first="Pablo" last="Martinez-Martin">Pablo Martinez-Martin</name>
<affiliation wicri:level="3"><nlm:aff id="A11">Alzheimer Disease Research Unit and CIBERNED, Alzheimer Center Reina Sofia Foundation, Carlos III Institute of Health, Madrid, Spain</nlm:aff>
<country xml:lang="fr">Espagne</country>
<wicri:regionArea>Alzheimer Disease Research Unit and CIBERNED, Alzheimer Center Reina Sofia Foundation, Carlos III Institute of Health, Madrid</wicri:regionArea>
<placeName><settlement type="city">Madrid</settlement>
<region nuts="2" type="region">Communauté de Madrid</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Stebbins, Glenn T" sort="Stebbins, Glenn T" uniqKey="Stebbins G" first="Glenn T." last="Stebbins">Glenn T. Stebbins</name>
<affiliation wicri:level="2"><nlm:aff id="A12">Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois</wicri:regionArea>
<placeName><region type="state">Illinois</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Goetz, Christopher G" sort="Goetz, Christopher G" uniqKey="Goetz C" first="Christopher G." last="Goetz">Christopher G. Goetz</name>
<affiliation wicri:level="2"><nlm:aff id="A12">Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois</wicri:regionArea>
<placeName><region type="state">Illinois</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Schrag, Anette" sort="Schrag, Anette" uniqKey="Schrag A" first="Anette" last="Schrag">Anette Schrag</name>
<affiliation wicri:level="1"><nlm:aff id="A9">Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ, United Kingdom</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Reta Lila Weston Institute of Neurological Studies, UCL Institute of Neurology, 1 Wakefield Street, London WCIN 1PJ</wicri:regionArea>
<wicri:noRegion>London WCIN 1PJ</wicri:noRegion>
</affiliation>
</author>
</analytic>
<series><title level="j">Movement disorders : official journal of the Movement Disorder Society</title>
<idno type="ISSN">0885-3185</idno>
<idno type="eISSN">1531-8257</idno>
<imprint><date when="2013">2013</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Databases, Factual (statistics & numerical data)</term>
<term>Dystonia (diagnosis)</term>
<term>Dystonia (psychology)</term>
<term>Dystonia (therapy)</term>
<term>Health Planning Guidelines</term>
<term>Humans</term>
<term>Psychometrics</term>
<term>Questionnaires</term>
<term>Severity of Illness Index</term>
</keywords>
<keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Dystonia</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Dystonia</term>
</keywords>
<keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>Databases, Factual</term>
</keywords>
<keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Dystonia</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Health Planning Guidelines</term>
<term>Humans</term>
<term>Psychometrics</term>
<term>Questionnaires</term>
<term>Severity of Illness Index</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en"><sec id="S1"><title>Background</title>
<p id="P1">Many rating scales have been applied to the evaluation of dystonia, but only few have been assessed for clinimetric properties. The Movement Disorders Society commissioned this task force to critique existing dystonia rating scales and place them in the clinical and clinimetric context.</p>
</sec>
<sec id="S2"><title>Methods</title>
<p id="P2">A systematic literature review was conducted to identify rating scales that have either been validated or used in dystonia.</p>
</sec>
<sec id="S3"><title>Results</title>
<p id="P3">Thirty six potential scales were identified. Eight were excluded because they did not meet review criteria, leaving twenty-eight scales that were critiqued and rated by the task force. Seven scales were found to meet criteria to be “recommended”: the Blepharospasm Disability Index is recommended for rating blepharospasm; the Cervical Dystonia Impact Scale and the Toronto Western Spasmodic Torticollis Rating Scale for rating cervical dystonia; the Craniocervical Dystonia Questionnaire for blepharospasm and cervical dystonia; the Voice Handicap Index (VHI) and the Vocal Performance Questionnaire (VPQ) for laryngeal dystonia; and the Fahn-Marsden Dystonia Rating Scale for rating generalized dystonia. Two “recommended” scales (VHI and VPQ) are generic scales validated on few patients with laryngeal dystonia, whereas the others are disease-specific scales. Twelve scales met criteria for “suggested” and seven scales met criteria for “listed”. All the scales are individually reviewed in the <xref rid="SD1" ref-type="supplementary-material">online appendix</xref>
.</p>
</sec>
<sec id="S4"><title>Conclusion</title>
<p id="P4">The task force recommends five specific dystonia scales and suggests to further validate in dystonia two recommended generic voice-disorder scales. Existing scales for oromandibular, arm and task-specific dystonia should be refined and fully assessed. Scales should be developed for body regions where no scales are available, such as lower limbs and trunk.</p>
</sec>
</div>
</front>
</TEI>
<affiliations><list><country><li>Allemagne</li>
<li>Espagne</li>
<li>France</li>
<li>Italie</li>
<li>Pays-Bas</li>
<li>Royaume-Uni</li>
<li>États-Unis</li>
</country>
<region><li>Communauté de Madrid</li>
<li>Gueldre</li>
<li>Géorgie (États-Unis)</li>
<li>Illinois</li>
<li>État de New York</li>
</region>
<settlement><li>Madrid</li>
<li>Nimègue</li>
<li>Paris</li>
</settlement>
</list>
<tree><country name="Italie"><noRegion><name sortKey="Albanese, Alberto" sort="Albanese, Alberto" uniqKey="Albanese A" first="Alberto" last="Albanese">Alberto Albanese</name>
</noRegion>
<name sortKey="Albanese, Alberto" sort="Albanese, Alberto" uniqKey="Albanese A" first="Alberto" last="Albanese">Alberto Albanese</name>
<name sortKey="Sorbo, Francesca Del" sort="Sorbo, Francesca Del" uniqKey="Sorbo F" first="Francesca Del" last="Sorbo">Francesca Del Sorbo</name>
</country>
<country name="États-Unis"><region name="Illinois"><name sortKey="Comella, Cynthia" sort="Comella, Cynthia" uniqKey="Comella C" first="Cynthia" last="Comella">Cynthia Comella</name>
</region>
<name sortKey="Goetz, Christopher G" sort="Goetz, Christopher G" uniqKey="Goetz C" first="Christopher G." last="Goetz">Christopher G. Goetz</name>
<name sortKey="Jinnah, H A" sort="Jinnah, H A" uniqKey="Jinnah H" first="H. A." last="Jinnah">H. A. Jinnah</name>
<name sortKey="Mink, Jonathan W" sort="Mink, Jonathan W" uniqKey="Mink J" first="Jonathan W." last="Mink">Jonathan W. Mink</name>
<name sortKey="Stebbins, Glenn T" sort="Stebbins, Glenn T" uniqKey="Stebbins G" first="Glenn T." last="Stebbins">Glenn T. Stebbins</name>
</country>
<country name="Pays-Bas"><region name="Gueldre"><name sortKey="Post, Bart" sort="Post, Bart" uniqKey="Post B" first="Bart" last="Post">Bart Post</name>
</region>
<name sortKey="Leentjens, Albert F G" sort="Leentjens, Albert F G" uniqKey="Leentjens A" first="Albert F. G." last="Leentjens">Albert F. G. Leentjens</name>
</country>
<country name="France"><noRegion><name sortKey="Vidailhet, Marie" sort="Vidailhet, Marie" uniqKey="Vidailhet M" first="Marie" last="Vidailhet">Marie Vidailhet</name>
</noRegion>
</country>
<country name="Allemagne"><noRegion><name sortKey="Volkmann, Jens" sort="Volkmann, Jens" uniqKey="Volkmann J" first="Jens" last="Volkmann">Jens Volkmann</name>
</noRegion>
</country>
<country name="Royaume-Uni"><noRegion><name sortKey="Warner, Thomas T" sort="Warner, Thomas T" uniqKey="Warner T" first="Thomas T." last="Warner">Thomas T. Warner</name>
</noRegion>
<name sortKey="Schrag, Anette" sort="Schrag, Anette" uniqKey="Schrag A" first="Anette" last="Schrag">Anette Schrag</name>
</country>
<country name="Espagne"><region name="Communauté de Madrid"><name sortKey="Martinez Martin, Pablo" sort="Martinez Martin, Pablo" uniqKey="Martinez Martin P" first="Pablo" last="Martinez-Martin">Pablo Martinez-Martin</name>
</region>
</country>
</tree>
</affiliations>
</record>
Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Santé/explor/MovDisordV3/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000A14 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 000A14 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien |wiki= Wicri/Santé |area= MovDisordV3 |flux= Main |étape= Exploration |type= RBID |clé= PMC:4207366 |texte= Dystonia rating scales: critique and recommendations }}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i -Sk "pubmed:23893443" \ | HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd \ | NlmPubMed2Wicri -a MovDisordV3
This area was generated with Dilib version V0.6.23. |